June 5, 2012

Mahiya's mood has been changing quite a bit these days. She has cycles of good and bad days. Any change in one of numerous medicine she take make her crabby. She is super sensitive to these changes, with every change in her meds high tone kicks in. She will have higher tone for even a week. High tone make it very difficult to give her any therapy. She will be pushing her head back as hard as she can that it could stop blood flow in my arms when I am holding her head. High tone kicks in her arms as soon as I touch her arms to do some therapy.

PT at the U of M is going well. She will be upset but still the PT keeps doing and after sometimes she gives up and starts cooperating. She is doing stander these days. It is not easy, she has to be rocked in the stander all for just 10 minutes of standing. 10 minutes in the stander is the best we could get out of her. Hope she improves.

We are looking to switch in-home OT to Gillette OT, because she does not do well at home. Now a days I feel like she is getting stranger anxiety. It is a good thing but still not good for therapy. As soon as she hears a new voice in the house she gets upset. She knows if someone else is holding her other than me, my husband or her nurse.

Mahiya's sleeping pattern is very disturbed. In the day-time she refuses to take a nap even if she is super tired. She will be cranky but will not go to sleep and by the end of the day she will be so exhaust.

This week is Mithilya last week of Kindergarten and it is going to get hectic for me starting next week.

Thanks everyone for your continued support...