We had an neurologist appointment. We were really scared before the appt, as we did not want to hear anything negative about Mahiya's neurological state. I don't know if we are cheating ourselves or just don't want to face the truth. But the most important thing is we don't want anything or anyone to do even a slightest damage to our hope. Hope is all left in our life and it is our strength. The appointment went well. The Dr. J was a very nice person. He is one of the best in our area. He spoke for 30 mins and it was very pleasant. He neither gave us false hope or ruin our hopes. He exactly understood how devastated we are and the pain we are in. One of his point made a great impact on me.
He said "I have treated so many neurologically affected kids, kids who will never walk or talk to kids who top their class, but they all are happy. They don't care about their disability. They are happy the way they are. It is like happiness is in a separate gene. Keep them happy. Just enjoy the time with them. It does not mean that you have to forget about their disability, but you have to learn to lower your expectation for your kid. Keeping them HAPPY matters the most."
It was such a great statement. We don't know our destination, but will keep moving with hope and try our best to keep her happy.
When we bring up any issues with Mahiya to the doctors, they say "she is very complex it is not easy to tell anything or pinpoint a reason". We don't know what to do sometimes.Wish there was a specialist who is an expert in all fields. Mahiya's progress has been really slow. Patience is a virtue. Hope our patience will be rewarded.
